With
the demographics of increased numbers of older adults, there will be an
increased incidence of chronic disease. With increased technology
of genetics research, specific genetic expressions now are matched to identify
risks for specific chronic diseases. Many of these conditions identified
represent illnesses for which there is no treatment. Dilemmas are posed
to family members and the relatives of such diagnosed patients to participate
in testing. There are many implications of testing results. The outcome
of positive results with the understanding that said relatives have the
likelihood of developing the illness presents families with difficult issues.
Insurance companies may cancel or drop those insured if testing is acknowledged
and/or the results are positive. Testing may be beneficial if the results
are definitive for the development of a specific disease and if there are
treatment implications, such as adverse or beneficial results.
If
genetic testing is done there should be accompanying pre-and post-counseling.
Discrimination or exclusion based on the testing should not occur.
What is done with the information, with whom it is shared, how long samples
are kept, and should it be done blindly are all questions being asked.
The
lack of clear protocols for us
The
absence of policies that deal with associated problems.
Reproductive
impact
Race
and ethnicity overlap
Involuntariness
and permanence of the results
The
familial implications
Prognostic
uncertainty
Stigmatization.
Brownlee, S., Cook, G. G., & Hardigg, V. (1994). "Genes and caviar, tinkering with destiny." U.S. News and World Report. 8/22/94: 50-67.
Elliott, J. (1995). "Genetic dilemmas: Natural Science," Science and Values, March 1995: 212-217.
Rennie, J. (199?). "Grading the gene tests." Scientific American. 270:88-97.
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